so it has been a while since my last post (again) but right now i am in the family room at swedish hospital and medical center. hanging out during my daughter's week long video eeg stay. the doctor has asked we keep her here until friday ro saturday so they may get as much data as possible. we have been weaning her off meds as well to get some seizures. i hope this helps us get some answers.
I have to say though that i am unimpressed with the facility in general the staff is rude they act like i am a high maintanence mom for no reason, and they treat me like i dont know anything. i am cleaning up everything, even changing the sheets. no offered to help us give annika a sponge bath so we did it ourselves. i asked them to re-tape something because the tape was getting loose and sticking up and annika was picking at it and they did it with attitude. first asking why i thought it was nesescary and then huffing through it. i am tired of this treatment. i am a mom doing my best formy daughter and i am being treated like an abusive parent from some backwoods town who doesnt know anything.
arrrrgh
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That sucks! One thing I can say about Cleveland Clinic where we go is everyone from housekeeping on up to neurologists are awesome and made our stay great. It doesn't hurt the hospital has a McDonalds, Starbucks, Subway and other good food! Those long video EEG stays suck though. The minute they sign our release we are gone!
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