absent

so it has been a while since my last post (again) but right now i am in the family room at swedish hospital and medical center. hanging out during my daughter's week long video eeg stay. the doctor has asked we keep her here until friday ro saturday so they may get as much data as possible. we have been weaning her off meds as well to get some seizures. i hope this helps us get some answers.
I have to say though that i am unimpressed with the facility in general the staff is rude they act like i am a high maintanence mom for no reason, and they treat me like i dont know anything. i am cleaning up everything, even changing the sheets. no offered to help us give annika a sponge bath so we did it ourselves. i asked them to re-tape something because the tape was getting loose and sticking up and annika was picking at it and they did it with attitude. first asking why i thought it was nesescary and then huffing through it. i am tired of this treatment. i am a mom doing my best formy daughter and i am being treated like an abusive parent from some backwoods town who doesnt know anything.

arrrrgh

ugh

despite Sassy's best attempt to make me feel like less of a tard. (sorry i am not feeling pc today) i fucked up big time (also excuse my language) i left annika pill seperater, daily thingum where apparently she could reach (who knew my daughter was this talented) and she got some extra pills last night. not very many. but she did. i called the poison control, and i called the er and was told she would be fine, just to make sure she was ok at 2 hours and 4 hours post ingestion.
she slept with me.
i just couldnt let her be alone because i could not let go that i almost let my kid kill herself like a big giant reject of a mom who should not be trusted alone. its like the time she started to roll, and i had her on my bed and she pushed with her arms rolled, hit the bedside table and landed on the floor on her face. i felt really crappy then too. i know i am technically speaking a good mom. i love my baby with everything i got. but seriously how on earth could i have let this happen.
arrrrrrgh. i know what people are gonna say etc. but its gonna take a while to get over this "learning" experience.

doctors appointment

ANNIKA HAD A 3 MONTH recheck yesterday with her neurologist. and the neurologist says that since she has done so well and the dilantin seems to be doing its job. we can take her off the Keppra. she is getting 3.6mls twice daily now but starting today she will be on 3mls twice daily for 1 week, then 2.5, then 2, then 1 then 0 yay. for no keppra. also in good news my husband has bee up in the icy straights in alaska for a week turning circles until they could go through the gulf to get to whittier. 1 whole week he turned circles, and now they are on there way. hopefully he wont have to turn circles on the way home but it is possible. anyways. also my sister in law got a new job at the victoria clipper, a job i think she will be much happier at and things will go really well for her. i am so proud of her. yays.
anyhoo good news all around todya.